Research projects - ongoing
European reviews. These three scoping reviews will reveal health practices for families with older patients with cancer, dementia or heart patients.
PI: the FAME-RN group from all over Europe.
Video-clinics. This study aims to replace personal consultations in the cancer nursing outpatient clinic with video-consultations to reduce the family stress and transport for patients and families. The intervention is evaluated by a mixed methods approach.
PI: Lene Vedel Vestergaard/ Karin B. Dieperink
PhD projects - ongoing
Advance Care Planing in chronic kidney care:
Principal invstigator: Christina Egmose Frandsen, PhD student
Main supervisor: Hanne Agerskov
Co-supervisors: Hans Dieperink and Bettina Trettin
eHealth intervention for spiritual well-being in people suffering from cancer
Principal investigator: Maiken Langhoff Kidholm, PhD Student
Main supervisor: Niels Christian Hvidt
Co-supervisors: Karin Dieperink, Ricko Nissen and Jens Søndergaard
Polypharmacy and medication safety in vulnerable older migrants with cognitive disorders – A multi method project.
Principal investigator: Camilla Lynnerup, PhD student
Main supervisor: Dorthe S. Nielsen
Co-supervisor: Morten Sodemann, Anton Pottegård, Charlotte Rossing
Promoting hand use in infants at risk of cerebral palsy by early intervention
Principal investigator: Helle Sneftrup Poulsen
Main supervisor: Lisbeth Rosenbek Minet
Co-supervisors: Alice Ørts, Charlotte Ytterberg, Hanne Lauridsen
Principal investigator: Eithne Hayes Bauer, PhD student
Main supervisor: Karin B. Dieperink
Co-supervisors: Georg Bollig, Frans Brandt Kristensen and Anthony Smith
Bauer E, Schultz A, Brandt F, Smith A, Bollig G, Dieperink K. Protocol for an integrative review: patient and families' perspectives on telehealth in palliative care. BMJ Open 2022;12e062723
Eithne Hayes Bauer’s is Master of Science in Nursing. Her Ph.D. project is affiliated with FaCe and entitled ‘Telemedicine inpalliative care – A model of care based on stakeholders’ perspectives and the core competencies of palliative care’, is divided into three sub-studies.
The overall aim is to develop a model of care for telemedicine in palliative care(telepalliative care), that can guide and support healthcare workers in providing tailor-made patient- and family-centered palliative care in a virtual context. The first study is a review of the evidence that takes a look at patients’ and families’ perspectives on telepalliative care over the last 10 years in high-income, middle-income, and low-income countries. Eithne and the research group hopeto gain valuable information about the needs of families, how and when telemedicine works best for them, and what barriers still exist to families’ adoption of telepalliative care. The group published a protocol for the review in2022 and expects to publish the results of the review early next year. Drawingon these results, the second study will be carried out at the Hospital of Southern Denmark, Sønderborg, and Odense University Hospital. Patients, families, and healthcare professionals will be invited to take part in interviewsand focus groups about their experiences with telepalliative care. Fieldobservations will also be performed to observe how palliative care is delivered in a virtual context. In the third study, which will combine the results of the previous studies, patients, families, and healthcare workers will be invited to participate in workshops to develop a proposal for a model of telepalliativecare.
The project is financed by Grant from University of Southern Denmark, Grantfrom Hospital of Southern Denmark, and “Knud og Edith Eriksens Mindefond”.
The ACE study is a participatory design study to focusing on improving outcomes by person-family centered assessment and tailored care for adults and families discharged from the Emergency Department within 24 hours.
Principal investigator: Christina Østervang, PhD student
Main supervisor: AnnMarie Lassen
Co-supervisors: Charlotte Myhre, Karin B. Dieperink and Elisabeth Coyne
Østervang C, Lassen A, Schmidt T, Coyne E, Dieperink KB, Jensen CM. Development of a health information system to promote emergency care pathways: A participatory design study. Digit Health. 2022 Dec 26;8:20552076221145856.
Østervang C, Lassen AT, Øelund K, Coyne E, Dieperink KB, Jensen CM. Health professionals' perspectives of patients' and family members' needs in emergency departments and patient pathway improvement: a qualitative study in Denmark. BMJ
Open. 2022 Feb 28;12(2):e057937.
Østervang C, Lassen AT, Jensen CM, Coyne E, Dieperink KB. What are the needs and preferences of patients and family members discharged from the emergency department within 24 hours? A qualitative study towards a family-centred
approach. BMJ Open. 2021 Nov 9;11(11):e050694.
Østervang C, Lassen AT, Jensen CM, Coyne E, Dieperink KB. How to improve emergency care to adults discharged within 24 hours? Acute Care planning in Emergency departments (The ACE study): a protocol of a participatory design study. BMJ Open. 2020 Dec 22;10(12):e041743.
The FAMKO project – a collaborative intervention project between the municipality of Odense and the Family Clinic OUH to support wellbeing of vulnerable women, families and their children.
Principal investigator: Lene Nygaard
Ellen Aagaard Nøhr, Dorthe Nielsen, Deborah Davis
The multilingual encounter
Principal investigator: Lisbeth Birkelund, PhD student
Main Supervisor: Dorthe Nielsen
Co-supervisor: Morten Sodemann, Karin B. Dieperink and Johanna Lindell
Lisbeth Birkelund is Master of Arts in English and Nordic Languages and Literature and has worked as a language teacher for several years. A profound interest in language based inequality led to her PhD project in which she investigates the impact of language on encounters between healthcare professionals and patients from ethnic minority backgrounds with limited Danish proficiency and cancer. Putting patients first can be difficult without a shared language, and language barriers can have major consequences for the patient who speaks little or no Danish.
However, language barriers not only impact negatively on patients and healthcare professionals but on familymembers who often have an important role in making communication possible. Therefore, the project is affiliated to FaCe.
Language barriers not only impact negatively on patients and healthcare professionals but onfamily members who often have an important role in making communication possible.In the first study, we use participant observations to examine the communication that takesplace during consultations and chemotherapy treatments at the Department of Oncology atVejle Hospital and Odense University Hospital, Denmark. In the second study, we interview the patients and the family members who want toparticipate to provide knowledge about how they experience the communication as well as togain insight into their basic human conditions. The importance of speaking mother tongue, notleast when being seriously ill, is directly addressed in the second study in which the patientsare invited to further express themselves through diary narratives. In the final study, thehealthcare professionals will be invited for focus group interviews to get their perspective onthe impact of language barriers. Both the patient, family, and healthcare professional perspective will be used to improve the communication processes in multilingual healthcareencounters with respect to both the importance and consequences of speaking mother tongue.
The project is financed by the University of Southern Denmark, Odense University Hospital, andthe Danish foundation, Østifterne.
We want to be a family - Children and adolescents with cancer and their families
Principal investigator: Camilla Littau Nielsen, PhD student
Main supervisor: Jane Clemensen
Co-supervisors: Kristina Garne Holm, Claus Sixtus Jensen, Michael Thude Callesen.
Patient representative: Ditte Magnusson and Mette Vedtofte
Research projects - in pipeline
Experiences, coping and dynamics in families including a child with end-stage renal disease.
PI: Hanne Agerskov
Experiences, coping and dynamics in families including a child with a kidney transplant.
PI: Hanne Agerskov
How older adults who have lost a life partner identify self-care requisite and carry out self-care activities: A Systematic review and thematic analysis.
PI: Lisbeth Minet
Interpreting for the family – health care professionals perspectives. A qualitative study.
PI: Dorthe Nielsen
PTSD and depression in families affected by sudden heart death.
PI: Jens Mogensen
PhD projects - in pipeline
A project that tests the effect of the Marriage Check-up, a brief standardized relationship intervention, on interparental relationship quality, interparental conflict pattern and social-emotional child development. Collaboration with Aalborg University Hospital.
PI: RM Laura Kjær Jakobsen
Family and patient engaging health technology. An innovative study in a participatory design for patients and families affected by breast cancer. The PENTINNO study.
PI: Karin Dieperink, Malene Hildebrandt, Jane Clemensen, Annette Kodahl, Lene Vedel Vestergaard
Ph.d.-studiet er en del af frontlinjecenteret PREMIO
Der foreligger et års finansiering til studiet samt to måneders løn til udarbejdelse af protokol.
Family focused interventions for migrant families with PTSD – a project consisting of three studies using qualitative interviews and questionnaires
PI: Dorthe Nielsen/Anne Brødsgaard/Karin Dieperink
Investigating and optimizing outcomes for family caregivers following cardiac arrest
PI: RN Britt Borregaard
Living with AL Amyloidosis - Supportive and palliative care in a patient and family perspective
PI: Anne Møller Clausen RN, MsN
Main supervisor: Nana Hyldig RN, MHS, Associate Professor
Co-supervisors: Professor Karin B Dieperink, Professor Niels Abildgaard, Charlotte Toftmann Hansen MD, PhD
When caring becomes a burden: Family-work imbalances in motherhood. A follow.up study nested in the Danish National Birth Cohort.
PI: Ellen Aagaard Nøhr/ PhD-studerende NN
Research projects - finished
Danish Nurses Attitudes towards Families’ Importance in Nursing Care. A survey.
PI: Birte Østergaard
This systematic quantitative review will reveal the existing family research on families’ with an adult person with cancer. The collaboration is researchers in Denmark and Australia.
PI: Elisabeth Coyne/Karin Dieperink
European Nurses Attitudes towards Families’ Importance in Nursing Care. A survey.
PI: the FAME-RN group
The Cancer & Caregiver study is a participatory study with the purpose to assess informal caregivers’ supportive care needs, which have a patient in outpatients’ cancer clinics. Furthermore, based on the needs the study will develop support interventions.
PI: Nina I. Andersen/Karin B. Dieperink
PhD projects - finished
Palliative Care. End-of life decisions in palliative care for lung- and pancreas cancer patients and families.
PI: Tine Ikander
Main supervisor: Karin B. Dieperink
Ikander T, Raunkiær M, Hansen O, Dieperink KB. Nurses' involvement in end-of-life discussions with incurable cancer patients and family caregivers: An integrative review. Palliat Support Care. 2022 Aug;20(4):570-581.
Ikander T, Dieperink KB, Hansen O, Raunkiær M. Patient, Family Caregiver, and Nurse Involvement in End-of-Life Discussions During Palliative Chemotherapy: A Phenomenological Hermeneutic Study. J Fam Nurs. 2022 Feb;28(1):31-42.
Ikander T, Jeppesen SS, Hansen O, Raunkiær M, Dieperink KB. Patients and family caregivers report high treatment expectations during palliative chemotherapy: a longitudinal prospective study. BMC Palliat Care. 2021 Feb
DOI: Patients and family caregivers report high treatment expectations during palliative chemotherapy: a longitudinal prospective study | BMC Palliative Care | Full Text (biomedcentral.com)