Research projects

European reviews. These three scoping reviews will reveal health practices for families with older patients with cancer, dementia or heart patients.

PI: the FAME-RN group from all over Europe.

Video-clinics. This study aims to replace personal consultations in the cancer nursing outpatient clinic with video-consultations to reduce the family stress and transport for patients and families. The intervention is evaluated by a mixed methods approach.

PI: Lene Vedel Vestergaard/ Karin B. Dieperink

Advance Care Planing in chronic kidney care:

Principal invstigator: Christina Egmose Frandsen, PhD student
Main supervisor: Hanne Agerskov
Co-supervisors: Hans Dieperink and Bettina Trettin

eHealth intervention for spiritual well-being in people suffering from cancer

Principal investigator: Maiken Langhoff Kidholm, PhD Student
Main supervisor: Niels Christian Hvidt
Co-supervisors: Karin Dieperink, Ricko Nissen and Jens Søndergaard

Polypharmacy and medication safety in vulnerable older migrants with cognitive disorders – A multi method project.

Principal investigator: Camilla Lynnerup, PhD student
Main supervisor: Dorthe S. Nielsen
Co-supervisor: Morten Sodemann, Anton Pottegård, Charlotte Rossing

Promoting hand use in infants at risk of cerebral palsy by early intervention

Principal investigator: Helle Sneftrup Poulsen
Main supervisor: Lisbeth Rosenbek Minet
Co-supervisors: Alice Ørts, Charlotte Ytterberg, Hanne Lauridsen

Telepalliative Care

Principal investigator: Eithne Hayes Bauer, PhD student
Main supervisor: Karin B. Dieperink
Co-supervisors: Georg Bollig, Frans Brandt Kristensen and Anthony Smith

Publications:

Bauer E, Schultz A, Brandt F, Smith A, Bollig G, Dieperink K. Protocol for an integrative review: patient and families' perspectives on telehealth in palliative care. BMJ Open 2022;12e062723
DOI: http://dx.doi.org/10.1136/bmjopen-2022-062723

Eithne Hayes Bauer’s is Master of Science in Nursing. Her Ph.D. project is affiliated with FaCe and entitled ‘Telemedicine inpalliative care – A model of care based on stakeholders’ perspectives and the core competencies of palliative care’, is divided into three sub-studies.

The overall aim is to develop a model of care for telemedicine in palliative care(telepalliative care), that can guide and support healthcare workers in providing tailor-made patient- and family-centered palliative care in a virtual context. The first study is a review of the evidence that takes a look at patients’ and families’ perspectives on telepalliative care over the last 10 years in high-income, middle-income, and low-income countries. Eithne and the research group hopeto gain valuable information about the needs of families, how and when telemedicine works best for them, and what barriers still exist to families’ adoption of telepalliative care. The group published a protocol for the review in2022 and expects to publish the results of the review early next year. Drawingon these results, the second study will be carried out at the Hospital of Southern Denmark, Sønderborg, and Odense University Hospital. Patients, families, and healthcare professionals will be invited to take part in interviewsand focus groups about their experiences with telepalliative care. Fieldobservations will also be performed to observe how palliative care is delivered in a virtual context. In the third study, which will combine the results of the previous studies, patients, families, and healthcare workers will be invited to participate in workshops to develop a proposal for a model of telepalliativecare.

The project is financed by Grant from University of Southern Denmark, Grantfrom Hospital of Southern Denmark, and “Knud og Edith Eriksens Mindefond”.

The ACE study is a participatory design study to focusing on improving outcomes by person-family centered assessment and tailored care for adults and families discharged from the Emergency Department within 24 hours.

Principal investigator: Christina Østervang, PhD student
Main supervisor: AnnMarie Lassen
Co-supervisors: Charlotte Myhre, Karin B. Dieperink and Elisabeth Coyne

Publications:
Østervang C, Lassen A, Schmidt T, Coyne E, Dieperink KB, Jensen CM. Development of a health information system to promote emergency care pathways: A participatory design study. Digit Health. 2022 Dec 26;8:20552076221145856.
DOI: https://doi.org/10.1177/20552076221145856

Østervang C, Lassen AT, Øelund K, Coyne E, Dieperink KB, Jensen CM. Health professionals' perspectives of patients' and family members' needs in emergency departments and patient pathway improvement: a qualitative study in Denmark. BMJ
Open. 2022 Feb 28;12(2):e057937.
DOI: http://dx.doi.org/10.1136/bmjopen-2021-057937

Østervang C, Lassen AT, Jensen CM, Coyne E, Dieperink KB. What are the needs and preferences of patients and family members discharged from the emergency department within 24 hours? A qualitative study towards a family-centred
approach. BMJ Open. 2021 Nov 9;11(11):e050694.
DOI: http://dx.doi.org/10.1136/bmjopen-2021-050694

Østervang C, Lassen AT, Jensen CM, Coyne E, Dieperink KB. How to improve emergency care to adults discharged within 24 hours? Acute Care planning in Emergency departments (The ACE study): a protocol of a participatory design study. BMJ Open. 2020 Dec 22;10(12):e041743.
DOI: http://dx.doi.org/10.1136/bmjopen-2020-041743

The FAMKO project – a collaborative intervention project between the municipality of Odense and the Family Clinic OUH to support wellbeing of vulnerable women, families and their children.

Principal investigator: Lene Nygaard
Ellen Aagaard Nøhr, Dorthe Nielsen, Deborah Davis

The multilingual encounter

Principal investigator: Lisbeth Birkelund, PhD student
Main Supervisor: Dorthe Nielsen
Co-supervisor: Morten Sodemann, Karin B. Dieperink and Johanna Lindell

Lisbeth Birkelund is Master of Arts in English and Nordic Languages and Literature and has worked as a language teacher for several years. A profound interest in language based inequality led to her PhD project in which she investigates the impact of language on encounters between healthcare professionals and patients from ethnic minority backgrounds with limited Danish proficiency and cancer. Putting patients first can be difficult without a shared language, and language barriers can have major consequences for the patient who speaks little or no Danish.

However, language barriers not only impact negatively on patients and healthcare professionals but on familymembers who often have an important role in making communication possible. Therefore, the project is affiliated to FaCe.

Language barriers not only impact negatively on patients and healthcare professionals but onfamily members who often have an important role in making communication possible.In the first study, we use participant observations to examine the communication that takesplace during consultations and chemotherapy treatments at the Department of Oncology atVejle Hospital and Odense University Hospital, Denmark. In the second study, we interview the patients and the family members who want toparticipate to provide knowledge about how they experience the communication as well as togain insight into their basic human conditions. The importance of speaking mother tongue, notleast when being seriously ill, is directly addressed in the second study in which the patientsare invited to further express themselves through diary narratives. In the final study, thehealthcare professionals will be invited for focus group interviews to get their perspective onthe impact of language barriers. Both the patient, family, and healthcare professional perspective will be used to improve the communication processes in multilingual healthcareencounters with respect to both the importance and consequences of speaking mother tongue.

The project is financed by the University of Southern Denmark, Odense University Hospital, andthe Danish foundation, Østifterne.

We want to be a family - Children and adolescents with cancer and their families

Principal investigator: Camilla Littau Nielsen, PhD student
Main supervisor: Jane Clemensen
Co-supervisors: Kristina Garne Holm, Claus Sixtus Jensen, Michael Thude Callesen.
Patient representative: Ditte Magnusson and Mette Vedtofte

Experiences, coping and dynamics in families including a child with end-stage renal disease.

PI: Hanne Agerskov

Experiences, coping and dynamics in families including a child with a kidney transplant.

PI: Hanne Agerskov

How older adults who have lost a life partner identify self-care requisite and carry out self-care activities: A Systematic review and thematic analysis.

PI: Lisbeth Minet

Interpreting for the family – health care professionals perspectives. A qualitative study.

PI: Dorthe Nielsen

PTSD and depression in families affected by sudden heart death.

PI: Jens Mogensen

A project that tests the effect of the Marriage Check-up, a brief standardized relationship intervention, on interparental relationship quality, interparental conflict pattern and social-emotional child development. Collaboration with Aalborg University Hospital.

PI: RM Laura Kjær Jakobsen

Family and patient engaging health technology. An innovative study in a participatory design for patients and families affected by breast cancer. The PENTINNO study.

PI: Karin Dieperink, Malene Hildebrandt, Jane Clemensen, Annette Kodahl, Lene Vedel Vestergaard

Ph.d.-studiet er en del af frontlinjecenteret PREMIO

Der foreligger et års finansiering til studiet samt to måneders løn til udarbejdelse af protokol.

Family focused interventions for migrant families with PTSD – a project consisting of three studies using qualitative interviews and questionnaires

PI: Dorthe Nielsen/Anne Brødsgaard/Karin Dieperink

Investigating and optimizing outcomes for family caregivers following cardiac arrest

PI: RN Britt Borregaard

Living with AL Amyloidosis - Supportive and palliative care in a patient and family perspective

PI: Anne Møller Clausen RN, MsN
Main supervisor: Nana Hyldig RN, MHS, Associate Professor
Co-supervisors: Professor Karin B Dieperink, Professor Niels Abildgaard, Charlotte Toftmann Hansen MD, PhD

When caring becomes a burden: Family-work imbalances in motherhood. A follow.up study nested in the Danish National Birth Cohort.

PI: Ellen Aagaard Nøhr/ PhD-studerende NN

Danish Nurses Attitudes towards Families’ Importance in Nursing Care. A survey.

PI: Birte Østergaard

This systematic quantitative review will reveal the existing family research on families’ with an adult person with cancer. The collaboration is researchers in Denmark and Australia.

PI: Elisabeth Coyne/Karin Dieperink

European Nurses Attitudes towards Families’ Importance in Nursing Care. A survey.

PI: the FAME-RN group

The Cancer & Caregiver study is a participatory study with the purpose to assess informal caregivers’ supportive care needs, which have a patient in outpatients’ cancer clinics. Furthermore, based on the needs the study will develop support interventions.

PI: Nina I. Andersen/Karin B. Dieperink

Palliative Care. End-of life decisions in palliative care for lung- and pancreas cancer patients and families.

PI: Tine Ikander

Main supervisor: Karin B. Dieperink

Publications:

Ikander T, Raunkiær M, Hansen O, Dieperink KB. Nurses' involvement in end-of-life discussions with incurable cancer patients and family caregivers: An integrative review. Palliat Support Care. 2022 Aug;20(4):570-581.
DOI: https://doi.org/10.1017/S1478951521000596

Ikander T, Dieperink KB, Hansen O, Raunkiær M. Patient, Family Caregiver, and Nurse Involvement in End-of-Life Discussions During Palliative Chemotherapy: A Phenomenological Hermeneutic Study. J Fam Nurs. 2022 Feb;28(1):31-42.
DOI:  https://doi.org/10.1177/10748407211046308

Ikander T, Jeppesen SS, Hansen O, Raunkiær M, Dieperink KB. Patients and family caregivers report high treatment expectations during palliative chemotherapy: a longitudinal prospective study. BMC Palliat Care. 2021 Feb
26;20(1):37.
DOI: Patients and family caregivers report high treatment expectations during palliative chemotherapy: a longitudinal prospective study | BMC Palliative Care | Full Text (biomedcentral.com)